There has been an adjustment time going on to Lucys brace and yes I did find it hard at first,I had a feeling that the brace was not right for Lucy,after doing research I noticed that all the other younger children were getting custom made braces and these looked a little easier to live with.
I then found a brace called the spine core brace that works with stretchy bands that pull the torso in to position,a brace that can still be worn for excersise
http://www.londonscoliosisclinic.co.uk/index.htm
Here is a link to the web site.
I made a few calls and spoke to a great guy there who offered to see me as an NHS patient at Sheffiels childrens hospital,it meant a 6 hour round trip but I will travel the ends of the earth for my children so after a little deliberating from my doctor we got a referral and I am going to see the doctors at the Sheffield scoliosis centre,she will be in a spine core brace as soon as she is big enough,around 18 months time but they have said in the mean time they will be making her a custom brace that she will find a little easier to wear.
We are wearing th boston brace at night time now so that she still has plenty of time to play and run around.......yes I did say run,she has taken to running at top speed everywhere