Lucy Mai Liu

Now I have a little walker I have a little chatterbox and also a little girl with some attitude!!

She is just so determined and lord help anyone who tries to get in her way,her little temper is starting to show through and she hates not to get her own way.
She has this high pitched shreek that just goes through you and really makes you jump in to action.I am trying to stay stronger willed than she is right now as I know that it would be so easy to give in to everything for her,she has had to work so hard for everything,BUT,I realise that I have guide her in how to act and right now how not to act.

All said she is still amazingly cute and she has little conversations with me now,not always sure what she is talking about but she puts so much expression in to it that its so sweet.

One down side I have noticed lately is Lucy has started to have that drawn look to her face again,like she is about to fall asleep,even when she is not really tired,its a look I used to call the prader willi look and where ever I went people would say,awww she is tired,she is nearly asleep,Well its happeneing again so I am not sure why that is.
I am going to see her consultant on Monday so maybe it is just that she needs a higher dose of GH,or maybe just all this walking is just wearing her out.

Here are some pics of my little walker,she is walking almost more than crawling now clever girl

http://mygirlsanddan.blogspot.com/
First steps.I find the videos on here really slow down my blog so I have put it on my family blog if you would like to see

Ha ha never thought I would say those words.
Lucy is slowly mastering her walking technique,its slow progress,just like when she started her crawling and I remember thinking then I would never be able to leave her side even by an inch,then she mastered har crawling and things got easier,now we are on to walking........well I am back to heart in my mouth as I watch her waddle across the room in the direction of every table corner,fire place,door.My heart does a flip when I see her sway and free fall.Not always mind,she is getting better by the day but it just cant be left to chance.

I have now had to succomb and have purchased a large play pen so that she can be safe if i need to do something,eg go to the bathroom!!!

Lucy is starting to say a few more words and has started to say yes and nods at the same time,she doesnt say no but shakes her head side to side in a no action.

Things feel very normal at the moment,Lucy is just like Daniel was at his age,not so strong but she understands everything and will follow simple instructions now like fetch you hat,she puts up her feet to put on her shoes,she asks for things and she cries when I leave her.

This may sound really cruel but I love it when she cries as I walk out the room or get out the car as I walk round the front to get her,she cries till I get her,she doesnt want me to leave her in her room alone when its time to sleep and she shouts for me when she wakes up.I feel so needed by her now,yes yes she has always needed me,she is totally dependant on her care,but as a newborn she never fed from me,she never cried in the night,she never batted an eyelid when I left the room.Anyone could have been her carer.Not now,she wants,needs her mummy and she lets me know in a very vocal way that she loves me,wants me,needs me and it just fills me with even more love for her too

I think Lucy has been listening too much to her daddy as I am sure she is repeating his request for his beer.
I just think to hear her little voice (saying) stuff is just so cute.
She is really enjoying her strawberries here too,she has a good appetite but at the moment a very normal one,please let it stay that way

Lucy has been walking holding on to hands for a little while now and has taken the odd step when she has been encouraged,today she just decided to go for it.
She stood with her back to the chair and stood for a little while contemplating her next move and she just walked,she walked across the room and then she just kept going and going and she doesnt want to stop.

The down side is she doesnt know how to stop!!!

She kind of does a run at the end just to propel herself to the nearest resting point but unfortunatly this could be wall or the edge of a table so for now I will be her little shadow ready to catch my wandering angel.

I think housework,cooking and even visits to the bathroom will be off the agenda for me for the next few days,good job its nearly the weekend!!

I am so very proud of my little trooper

I actually brought Lucy a helmet and I was sooo excited to try her out with it and you must admit she looks very sweet in her hat.....but!!!! it stayed on all of five seconds,in fact just enough time for me to get a shot of her in it and she took if off and will just have non of it.

The helmet is from a company called baby no bumps and I think its a great idea for low tone children who are learning to walk but only if you have a baby that will wear it!!

She is however being extra careful and is managing to stay on her feet longer and longer,maybe she realises I mean business now I have brought her her hat and is just making sure I dont keep trying to put it on her.
So there you go if you dont want your baby falling and bumping head then buy them a stupid looking hat and that will sort them out as they will do anything so as not to wear it

Lucy has taken 4 very wobbly steps,well its a kind of lunge run but it was all on her own and she was very pleased and wants to keep on trying to have another go.

I think its very early for a child with PWS but to honest I am in no rush for her proper walking till she can balance a little more.

She has become very chatty just lately as well and she really lets you know what it is she wants and we can see the little diva in her now, Ohhhh dear we are in for a ride as she can really make a fuss.
I only wish we could have seen this Lucy when she was so tiny and barley able to move or make a sound,maybe I would have not been so sad and enjoyed the peace a little more.

What a little star!!

I am honestly thinking of plonking a bike helmet on her head though,she is soooo clumsy and yet she insists on climbing.
Low tone and climbing are a bad combination and if you look closely in the duck post you can see her sporting another bump/bruise

She is just a little trooper

We had a bit of a drama at the weekend and we ended up having to take Lucy to hospital.She became quite poorly very quickly and was in a lot of pain with her constant crying and then very quiet and floppy,we were seen straight away by the doctors and little Lucy was so unhappy and upset and it was such a worry not knowing what was wrong with her.

One of the nurses gave Lucy some knitted ducks to play with (her mother knits them) and Lucy hung on to the baby duck through all her tears and pain,poor little girl.

After a dose of calpol and 3 hours at the hospital Lucy began to get better and in the end was jumping up and down on her bed,Still with duck!!

Thankfully it seems her illness was just one of those things and all that matters is that she is better now but the nurse insisted we take the duck family home as Lucy had taken such a shine to them all.

I took a picture of Lucy with the ducks to send to the nurse as a way of thankyou,the ducks are doing well in their new home and Lucy is a fantastic adoptive mother hen